Renal Support Network (RSN) is here to empower people who have been diagnosed with kidney disease. Is that you? We know it sucks, we have all been there. We know one thing for sure is if you become knowledgeable about your illness, proactive in your care you will soon see there is lots of hope! Heck, some of us have lived with this illness for 50 plus years and doing great. Click here to read our Survivor Stories
Connecting with people who have already gone down this path is crucial to survivorship. We will tell you what to ask, what to expect and how to deal with lifestyle changes. You will even make a few friends if you hang out with us. We can help you manage all the uncertainties and emotions. If you would like to be part of our kidney kin community, click here to join an online support group.
We have lots of information, so take a few minutes to look around. Here are some highlights.
Capturing Dreams: Renal Teen Prom Stories of Resilience and Hope We find all the guests who attended the prom to be a profound source of inspiration. That’s why we present “Capturing Dreams.” It is a series of remarkable stories from these brave young fighters who tackle kidney issues with unwavering determination. These stories serve as a reminder of hope and ignite aspirations for a promising future: Breck’s story, “The Princess in Scrubs”, Austin’s story, “The Patient’s Politician”, Natalie’s story, “The Hopeful, Loving Badass”, Reyna and Jasmine’s story, “Connection Heals.”
Online Kidney Disease Support Groups and Social Activities You are never alone with this illness, we have a number of support group and activities online. We have all been where you are and know the myriad of emotions you are going through. One friend makes a difference! You have to do the work and show up.
Cooking For Your Kidney Health: Nutrition Information For the Kidney Diet Knowledge is power! RSN’s Nutritional Information Database is a great resource for people who have chronic kidney disease, are on dialysis, or have a kidney transplant and their families. This list is for people who like to prepare their own food from raw ingredients found at the grocery store. Here you will find the amount of sodium, potassium, phosphorus, fat, calories and more that is in just about anything you would want to stock in your pantry to make your own healthy meals.
Champions of Kidney Care Public Policy Education and Action Portal We don’t get in to politics here, but we do get into policy. As people who have kidney disease, we need to make every voice count. We are currently supporting several pieces of legislation. Get involved and help us be heard.
Embracing Independence with Kidney Disease: A Candid Look Behind the Scenes During a Home Dialysis Treatment featuring Rachel Cluthe. “Performing hemodialysis at home has significantly increased my flexibility and convenience. I’m glad I can share my journey with others,” says Rachel. Everyone in the kidney community should watch this video to understand the patient’s perspective.
KidneyTalk® Podcasts are a great way to learn and all you have to do is tune in when you waiting for the doc, in traffic or want to find a cozy place with your cat on your lap. In a recent episode, Lori sits down with Jeffrey Silberzweig, MD to discuss the inclusion of oral phosphate lowering drugs in the dialysis payment bundle starting in January 2025.
KidneyTalk® is the only magazine dedicated to empowering and enriching the lives of people who have chronic kidney disease (CKD) and has the largest printed distribution focused on kidney disease patients, reaching an impressive 45,000 readers per issue. This publication provides people who have kidney disease with education, encouragement and strategies to help navigate this illness. Many of the articles are written by people who know firsthand what it’s like to manage this illness and succeed.
Kidney Transplant Dashboard When people are seeking a kidney transplant, it can be difficult to find all the information they need to navigate their illness and the transplant process. RSN’s new Tableau dashboard, “Kidney Donations Save Lives,” makes it easier for patients, families, and friends to understand the options.
The user-friendly dashboard presents data about kidney transplants, on both the national and state levels. With an interactive map, people can click on their state to see information about each transplant center. The dashboard shows how many people are active on the waiting list in your geographical area, what type of solid organ donation transplants each center performs, and the number of kidney transplants done by each hospital.
Congratulations to the 21st Annual Essay Contest Winners! The of the 21st essay contest was “How do you use your creativity to help cope with kidney disease?” This inspiring competition encouraged individuals living with kidney disease to share their experiences and insights on how creativity has been a vital tool in their coping journey. The contest is open to anyone in the United States who has been diagnosed with chronic kidney disease.
Kidneys for Kids is a 60-page activity book that helps children understand kidney disease, dialysis, and transplant in an easy-to-understand engaging format. This book was written by Anyssa Dang to help her younger brother Kavan who was diagnosed with kidney disease and didn’t understand what was happening.
Online Exercise Classes for People Who Have Kidney disease Get your much needed exercise at Kidney Kin Fitness with personal trainer, Edina Tanacs and Be Fit While You Sit with personal trainers, Nicole Simpson and Karen Langevin.
Get the Scoop on Kidney Stuff with Neff & Nuff! RSN shines a light on kidney health, organ donation and the importance of taking your transplant meds in a clever animated video series featuring two animated kidney stars who educate the public about kidney care. Watch all three videos in English or in Spanish.
Share Your Spare Kidney Transplant Conversation Kit To help you spread the word about giving the gift of life, we’ll send you a “Share Your Spare” Kit, a gift to you from RSN with a donation of $50. In your kit you’ll find two plush kidneys, two information booklets, and an inspirational poem for you to display.
Ambient Sounds and Music for Relaxation We know kidney disease is accompanied by anxiety. From sitting in a dialysis chair for many hours, waiting for a test result or when you just feel overwhelmed. Let your mind and body relax while listing to the comforting sounds. Choose a soothing rainfall, a peaceful forest stream, rainforest birds or calming instrumentals, then close your eyes and let your stress and anxiety fade away.
Introducing RSN’s “You Make a Difference” Collection Say “Thank You” to your favorite healthcare professional, caregiver, or friend. Let them know how grateful you are for all the times that they’ve provided you with loving care, support and hope. Each lapel pin comes with a mini greeting card and matching quote.
RSN Members receive a dose of hope by learning how others succeed
Join at no charge and receive a complimentary subscription to Bi-Annual KidneyTalk™ magazine, RenAlert E-News, invitations to all of RSN’s online kidney kin community events and more.
Kidney Disease and Dialysis Recipes After reading all this you may be hungry so here are some recipes for people who are on dialysis. When you are on dialysis its important monitor phosphorus, potassium and sodium. If you are not on dialysis and want to learn how to slow the progression down and what to eat, click here to learn about preventing kidney disease or slow the progression.