Renal Support Network (RSN) is here to empower people who have been diagnosed with kidney disease. Is that you? We know it sucks, we have all been there. We know one thing for sure is if you become knowledgeable about your illness, proactive in your care you will soon see there is lots of hope! Heck, some of us have lived with this illness for 50 plus years and doing great. Click here to read our Survivor Stories
Connecting with people who have already gone down this path is crucial to survivorship. We will tell you what to ask, what to expect and how to deal with lifestyle changes. You will even make a few friends if you hang out with us. We can help you manage all the uncertainties and emotions. If you would like to be part of our kidney kin community, click here to join an online support group.
We have lots of information, so take a few minutes to look around. Here are some highlights.
Hope Week • RSN’s National Online Patient Education & Lifestyle Meeting for People Who Have Kidney Disease Hope Week is a five-day national, virtual event. Each day will focus on a specific disease or treatment for kidney disease. Speakers will include healthcare professionals and people who have learned to live and thrive in spite of having kidney disease.
Embracing Independence with Kidney Disease: A Candid Look Behind the Scenes During a Home Dialysis Treatment featuring Rachel Cluthe. “Performing hemodialysis at home has significantly increased my flexibility and convenience. I’m glad I can share my journey with others,” says Rachel. Everyone in the kidney community should watch this video to understand the patient’s perspective.
We don’t get in to politics here, but we do get into policy. As people who have kidney disease, we need to make every voice count. We are currently supporting several pieces of legislation. Get involved and help us be heard.
Online Kidney Disease Support Groups and Social Activities You are never alone with this illness, we have a number of support group and activities online. We have all been where you are and know the myriad of emotions you are going through. One friend makes a difference! You have to do the work and show up.
Online Exercise Classes for People Who Have Kidney disease Get your much needed exercise at Kidney Kin Fitness with personal trainer, Edina Tanacs and Be Fit While You Sit with personal trainers, Nicole Simpson and Karen Langevin.
Kidney Transplant Dashboard When people are seeking a kidney transplant, it can be difficult to find all the information they need to navigate their illness and the transplant process. RSN’s new Tableau dashboard, “Kidney Donations Save Lives,” makes it easier for patients, families, and friends to understand the options.
The user-friendly dashboard presents data about kidney transplants, on both the national and state levels. With an interactive map, people can click on their state to see information about each transplant center. The dashboard shows how many people are active on the waiting list in your geographical area, what type of solid organ donation transplants each center performs, and the number of kidney transplants done by each hospital.
Get the Scoop on Kidney Stuff with Neff & Nuff! RSN shines a light on kidney health, organ donation and the importance of taking your transplant meds in a clever animated video series featuring two animated kidney stars who educate the public about kidney care. Watch all three videos in English or in Spanish.
Share Your Spare Kidney Transplant Conversation Kit To help you spread the word about giving the gift of life, we’ll send you a “Share Your Spare” Kit, a gift to you from RSN with a donation of $50. In your kit you’ll find two plush kidneys, two information booklets, and an inspirational poem for you to display.
KidneyTalk® Podcasts are a great way to learn and all you have to do is tune in when you waiting for the doc, in traffic or want to find a cozy place with your cat on your lap. In the latest episode, Dr. John Gill, MS, shares how the American Society of Transplantation’s Living Donor Circle of Excellence can remove this barrier by educating companies on how they play a role in this decision. Their unique program paves the way for corporate discussions and pledges to support employees who choose to give the gift of life.
Ambient Sounds and Music for Relaxation We know kidney disease is accompanied by anxiety. From sitting in a dialysis chair for many hours, waiting for a test result or when you just feel overwhelmed. Let your mind and body relax while listing to the comforting sounds. Choose a soothing rainfall, a peaceful forest stream, rainforest birds or calming instrumentals, then close your eyes and let your stress and anxiety fade away.
Introducing RSN’s “You Make a Difference” Collection Say “Thank You” to your favorite healthcare professional, caregiver, or friend. Let them know how grateful you are for all the times that they’ve provided you with loving care, support and hope. Each lapel pin comes with a mini greeting card and matching quote.
RSN Members receive a dose of hope by learning how others succeed
Join at no charge and receive a complimentary subscription to Bi-Annual KidneyTalk™ magazine, RenAlert E-News, invitations to all of RSN’s online kidney kin community events and more.
Kidney Disease and Dialysis Recipes After reading all this you may be hungry so here are some recipes for people who are on dialysis. When you are on dialysis its important monitor phosphorus, potassium and sodium. If you are not on dialysis and want to learn how to slow the progression down and what to eat, click here to learn about preventing kidney disease or slow the progression.