To foster innovation and improvements in kidney care, it is vital for everyone to express their concerns. Establishing relationships with elected officials and sharing personal experiences can significantly raise awareness. Here are three things you can do to get started.
1. Stay Informed: Keep yourself updated on news regarding kidney care and healthcare legislation.
“I always follow the news about xenotransplantation as I think it’s incredible my peers took this risk and are doing the research for us. One step closer.” – Cher T.
2, Engage with Members of Congress: Reach out to your state’s senator and representative to share your concerns. Personal stories can have a profound impact, influencing your elected official’s stance on relevant issues, particularly regarding the effects of kidney disease on individuals and families.
“When I’m asked about polycystic kidney disease (PKD), I explain that it is a genetic disorder that causes cysts to grow and damage the kidneys. If one parent (or both parents) carries the abnormal gene, a child has a 50 percent chance of having the disease.” – Julie P.
3. Attend Local Events: Participate in town halls or forums in which healthcare policy will be on the agenda. These gatherings provide excellent opportunities to pose questions and share your opinions directly with decision-makers.
“I asked my representative if they knew that kidney disease is a silent illness which goes undetected until in the later stages, when damage is already done. Early testing is needed.” – Marjorie M.
Click here to take our survey to share what you think should be the top priorities in kidney care innovation.
Note: As of this article’s publishing date, the Trump administration has proposed tariffs on all medications, citing a national security threat. We hope the medication and medical supplies tarifs will be reconsidered, as they will lead to increased prices and hinder access to care.
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