Hope Week • Agenda • RSN's National Online Patient Education & Lifestyle Meeting for People Who Have Kidney Disease
Topics and speakers are subject to change. Note times listed are Pacific Time.
WEDNESDAY, OCT. 9
CHRONIC KIDNEY DISEASE
2:30 PM PT – 5:45 PM PT/ MT:3:30 PM – 6:45 PM/ CT: 4:30 PM – 7:45 PM/ ET: 5:30 PM – 8:45 PM
2:30pm PT Visit Virtual Exhibits
2:45pm PT Welcome
3:00pm PT Stay Ahead: Preventing and Delaying Kidney Disease by Gregory Schlessinger, MD
3:30pm PT Fight the Fatigue: Anemia Management Tips & Tricks by Todd Minga, MD
4:15pm PT Break
4:30pm PT Why Emotions Matters and How to Navigate Them by Michelle Rowlett, MSW, LICSW
4:45pm PT Making Decisions: How I Weighed Pros and Cons of Treatment by Mary Baliker
5:00pm PT Fear & Anger Strategies I Used to Cope by Jeffrey Reises
5:15pm PT Denial – How I came to terms with kidney disease by Mary Wu
5:30pm PT Q&A
5:40pm PT Raffle (Must be present to win)
5:45pm PT Adjourn
THURSDAY OCT. 10
PATIENT EXPERIENCES AND SOLUTIONS IN DIALYSIS CARE
2:30 PM PT – 5:30 PM PT /MT: 3:30 PM – 6:30 PM/ CT: 4:30 PM – 7:30 PM/ ET: 5:30 PM – 8:30 PM
2:30pm PT Visit Virtual Exhibits
2:45 pm PT Welcome
3:00pm PT Phosphorus & Your Plate: Navigating Nutrition in Kidney Care by Nadia Marzella MS, RDN, CSR, LD
3:45pm PT Kidney Konnect Trivia: Where Knowledge Meets Hope! With Host Rachel Cluthe
4:00pm PT Break
4:15pm PT Wander Without Worry: My Travel Preparedness Tips by Dawn Edwards
4:30pm PT Working and Dialysis: How Do I Do It? by Alex Berrios Jr.
4:45pm PT Finding Your Motivation: Tips for Staying Inspired on Your Fitness Journey by Jennifer McClung
5:15pm PT Raffle (Must be present to win)
5:30pm PT Adjourn
FRIDAY, OCT. 11
KIDNEY TRANSPLANTATION FOR THE FUTURE
2:30 PM PT – 6:00 PM PT/ MT: 3:30 PM – 7:00 PM/ CT: 4:30 PM – 8:00 PM/ ET: 5:30 PM – 9:00 PM
2:30pm PT Visit Virtual Exhibits
2:45 pm PT Welcome
3:00pm PT Journey to Kidney Transplantation after Decades of Dialysis, Lori Hartwell interviews Jessica Frysz
3:45pm PT Acute Kidney Injury Phase 3 Study Update by Pamela Winterberg, MD
4:00pm PT Break
4:15pm PT Q&A Navigating the Kidney Transplant Journey: Ask the Expert by Rafael Villicana, MD
5:00pm PT Tips for Finding a Living Donor by Karol Franks
5:15pm PT My Journey to Get on the Transplant List: Do Your Homework by Joanna Galaes
5:30pm PT A Gift of Life and Love: Nick and Leslie’s Kidney Donation Journey
5:45pm PT Raffle (Must be present to win)
6:00pm PT Adjourn
SATURDAY, OCT. 12
ADVOCATING FOR YOURSELF & OTHERS
10:45 AM PT – 3:20 PM PT/ MT:11:45 AM – 4:20 PM/ CT:12:45 PM – 5:20 PM/ ET: 1:45 PM – 6:20 PM
10:45am PT Visit Virtual Exhibits
11:00am PT Welcome
11:15am PT Gout: The Basics – What It Is and How to Manage It by Anthony Barbieri, MD
12:00 PT Act Fast: Warning signs of an Infection – When to seek care Don’t Ignore An Infection as It Can Be Dangerous by Madeleine Pahl, MD
12:15pm PT Break
12:30pm PT The Benefits of Creativity and How it Help Me Cope by Lori Hartwell
1:00pm PT Internet Scams: How to Avoid Being a Victim – Group Discussion
1:30pm PT Dating, Meeting New People and Kidney Disease – Moderator Cher Thomas
2:15pm PT Easy Movement Exercises for Staying Active by Karen Langevin
2:45pm PT Renal Support Network, How it Benefits You and How You Can Help
3:15pm PT Raffle (Must be present to win)
3:20pm PT Adjourn
SUNDAY, OCT. 13
FOCUS ON YOUTH & FAMILY WITH KIDNEY DISEASE
10:45 AM PT – 1:20 PM PT/ MT: 11:45 AM – 2:20 PM/ CT: 12:45 PM – 3:20 PM/1:45 PM – 4:20 PM
10:45am PT Visit Virtual Exhibits
11:00am PT Welcome
11:15am PT Navigating Youth to Adulthood – When do you ask for help and what I learned? Panel discussion – Moderator Helen Currier, BSN, RN, CNN, CENP, MPH, CNN, and Lori Hartwell with Isela King, Natalie Neva
11:45am PT Working While Managing an Illness: Finding the Right Fit: Patient Discussion Panel Moderated by Isela King
12:15pm PT Break
12:30pm PT Navigating the Journey: Supporting Children and Youth who have Kidney Disease: A Parent’s Perspective – Patient Discussion Panel Moderated by Lori Hartwell
12:30pm PT Youth and Young Adult break out room
1:15pm PT Raffle (Must be present to win)
1:20pm PT Adjourn
2024 Hope Week Presenters
Hope Week speakers include healthcare professionals and people who have learned to live and thrive in spite of having kidney disease. A link to the faculty page will be added soon.