weKAN
Wellness & Education Kidney Advocacy Network
(weKAN)
The
Wellness & Education Kidney Advocacy Network (weKAN)—a program of RSN
established consists of “patient activists” from across the country
whose common goal is to ensure that people with CKD receive quality
care.
The following
efforts continue to be competently implemented and/or addressed:
-
Patient
advocacy, providing support for
legislation and regulatory
issues that would be of benefit to kidney patients.
-
Collaborative efforts, bringing together sectors of the community—professional
and patient alike—in order to combine forces
and not duplicate efforts in
pursuit of
common objectives (e.g., maintaining and improving the quality of patient
care).
-
Patient
education, providing print (e.g.,
Live & Give newsletter), electronic, and face-to-face
communications to help patients advocate for their needs in
meeting the challenges of living with CKD.
-
Mentoring
opportunities, involving a cross-section of the patient population interested
in helping other patients learn self-determination and self-advocacy to
influence decision-making on the medical and legislative fronts.
-
Speaking
opportunities, allowing patients to share knowledge with other patients and
healthcare professionals on how to initiate grassroots activities that would
allow more patients to become involved in advocacy issues.
-
Patient
representation in industry-wide renal care coalitions, allowing the patients’
perspective to be heard and taken into account.
If
kidney patients do not have a solid base from which to speak about their needs,
it seems inevitable that governing bodies will continue to derail services and
implement policies that may adversely impact patient care. With an active voice
and increased knowledge, the weKAN patient activists will not only be able to
advocate for themselves, but for the many thousands of patients destined to
follow.