Patients Educating Patients & Professionals (PEPP)

Patients Educating Patients & Professionals (PEPP), a program of RSN, is transforming the kidney community! During this past year, PEPP patient-speakers have given over 50 presentations, reaching over 4,000 patients and professionals.

PEPP is a series of educational programs led by patient-speakers who have been handpicked by RSN and then specifically trained to deliver these programs at meetings of renal patients and healthcare professionals.

The goal of PEPP--which is sponsored by an educational grant from Amgen--is to improve the outcomes of people who have kidney disease by providing them a working knowledge of the most prevalent CKD-related conditions, thereby encouraging involvement and self-management in their own care. PEPP also provides tips for healthcare professionals to help patients adhere to their care plan and help patients to become their own advocate. Below is a summary of the PEPP programs now available (the programs run from 30 to 50 minutes):

NEW Kidney Survivor: Lessons Learned from Experience
Living with CKD has all the elements of a really good game…it’s challenging, requires team effort, calls for strategy, and, at times, can be amusing. The truth is, however, we know surviving CKD is not a game. So what does it take to be a survivor? Patient Speakers will share their experience, strength and hope. Target Audience: professionals, patients & family members.

NEW Make Yourself a Perfect 10! Ten Tips for Living a Better Life on Dialysis

Patients will learn 10 tips for better living while on dialysis. Patients will share words of wisdom as well as solid advice to understand some of the critical issues that you need to understand to score a big number.  Target Audience: patients & family members.

Your Achy Breaky Heart: What you need to know about mineral and bone disorder
This presentation is a mix of medical facts and advice for the patient on how to help prevent or control secondary HPT, sprinkled with the patient-speaker's personal experiences. The audience will come away feeling empowered and hopeful despite the complexities of this condition--which are explained in uncommonly clear-cut terms. They will be provided with suggestions on how best to work with their healthcare team to prevent/control the comorbidities of secondary HPT.
Target Audience: patients & family members

Taking Charge and Adding Life to Your Years
Living long and well with CKD is dependent upon maintaining good outcomes. This presentation looks at what the Dialysis Outcomes and Practice Patterns Study (DOPPS) has revealed regarding nutrition, mineral metabolism, anemia management, vascular access, depression, and use of multivitamins and statins. This information will give patients the knowledge they need to take charge of their health.
Target Audience: patients & family members 

Promoting Patient Participation in the Dialysis Setting
This presentation provides insight on how healthcare professionals can encourage patients to become actively involved in their treatment plan. It emphasizes strategies and suggestions that healthcare professionals can use to assist patients in reaching their full potential, interspersed with personal success stories of the patient-speaker.
Target Audience: healthcare professionals

Empowering Patients to be Their Own Advocate
Dealing with a chronic disease requires patients to acquire skills in self-advocacy. In this presentation, healthcare professionals will learn ways to support and encourage patients who want to be more involved in their own care. As these patients are motivated by their own successes, they will be a catalyst to inspire fellow patients.
Target Audience: healthcare professionals 

Click here to View Patient Speakers.

If you are planning an upcoming patient or healthcare professional meeting that could benefit from having a PEPP speaker on its agenda, please contact Lori Hartwell at (818) 543-0896 or contact us. Together, we can make a difference.