Alport Syndrome and Kidney Failure, A Family Story

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Sharon Lagas, president and co-founder of the Alport Syndrome the Foundation

Alport Syndrome is an underdiagnosed and commonly misdiagnosed disease whose symptoms often go undetected. Sharon Lagas established the Alport Syndrome Foundation after losing her 38-year-old brother to this hereditary illness and then learning that she, her mother, and her two sons and two nieces also had it. Sharon explains what is involved and shares her personal story. Listen to this interview to learn more about the disease and the ongoing research into it, and find out how to stay informed.

You can also listen to the podcast on iTunes.

Learn more about Alport Syndrome at www.alportsyndrome.org

With your Hosts…

Stephen Furst Stephen Furst got his big break into movies in “Animal House,” in which he played Flounder. Stephen has also starred as Dr. Elliot Axelrod in “St. Elsewhere” and as Vir Cotto in “Babylon5.” He is a successful television and movie producer/director and a kidney patient.

 

Lori Hartwell is the Founder & President of Renal Support Network (RSN) and the host of KidneyTalk®, a radio podcast show. Lori was diagnosed with kidney disease at the age of two. In 1993 she founded RSN to instill “health, happiness and hope” into the lives of those affected by chronic kidney disease. Lori is also the author of the inspirational bookChronically Happy: Joyful Living in Spite of Chronic Illness and is a four-time kidney transplant recipient.

Web ID 940

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