You can have an impact on current legislation that will affect people who have chronic kidney disease including those on dialysis, who have a transplant or want to donate a kidney. Learn about the bills here and how to take action.
Take Action to Support Current Legislation that Affects People with Kidney Disease
Current Legislation for 115th Congress, 2017 - 1019
Chronic Kidney Disease Improvement in Research & Treatment Act of 2017
The American Health Care Act of 2017
The Living Donor Protection Act of 2017
Urge lawmakers to pass this bill so people with kidney failure have the choice of coverage options they deserve.
The Chronic Kidney Disease Improvement in Research and Treatment Act of 2017 (H.R. 2644) was introduced in Congress last week. This bipartisan legislation would augment research on kidney disease, improve coordination among kidney care providers and guarantee availability of Medigap policies to all ESRD patients eligible to purchase Medigap coverage regardless of their age or where they live.
The Chronic Kidney Disease Improvement in Research and Treatment Act of 2017 (H.R. 2644) will:
- Provide individuals with kidney failure access to managed care.
- Guarantee Medigap coverage for beneficiaries with end-stage renal disease regardless of their age or where they live
- Promote access to home dialysis treatment
- Allow individuals with kidney failure to retain access to private insurance.
- Improve patient decision-making and transparency by consolidating and modernizing quality programs.
- Increase access to Medicare kidney disease education benefit.
- Improve access in underserved areas.
Keep tabs on the bill’s progress
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Promote early detection and improve care of people who have kidney disease
Representatives Markwayne Mullin (R-OK), George Holding (R-NC), Linda Sanchez (D-CA), and G.K. Butterfield (D-NC) have introduced H.R. 3867 to amend title XVIII of the Social Security Act to create care management demonstration programs for chronic kidney disease under the Medicare program, and for other purposes.
Early detection is key to managing and slowing the progression of kidney disease. Over 90% of people who have kidney disease are not even aware that their kidneys are irreversibly damaged. People at the highest risk include those who have diabetes and hypertension and minority populations, who are disproportionately affected by CKD. African Americans develop CKD at a rate of nearly 4 to 1 compared to Caucasians and Hispanics at a rate of 2 to 1.
This bill will support demonstration programs, and pilot projects aimed at effective collaboration between primary physicians and nephrologist to promote early detection of kidney disease. The bill also promotes engaging patients in the decision-making process, and improving clinical results and lowering healthcare spending.
This bill will help improve the care of the 30 million people in the U.S. who are affected by CKD and the 600,000 current dialysis patients and transplant recipients, as well as the thousands of people who will develop kidney disease in the future.
This bill needs Co-Sponsors to add their names in support of this legislation.
Contact your senators today and ask them to sponsor this bill.
The Living Donor Protection Act would protect living organ donors and promotes organ donation.
On March 1, Representatives Jerrold Nadler, D-N.Y., and Jaime Herrera Beutler, R-Wash., introduced the Living Donor Protection Act of 2017, to protect the rights of living organ donors.
The Family and Medical Leave Act (FMLA) does not specify that living organ donors can take unpaid leave to recover from their donation and does not guarantee that donors will have a job waiting for them after surgery. Further, according a 2007 study in the American Journal of Transplantation, as many as 11% of living organ donors experience difficulty securing or paying for insurance after their procedures because of discriminatory practices.
The Living Donor Protection Act would protect living organ donors and promote organ donation in three ways:
- Prohibit life, disability, and long term care insurance companies from denying or limiting coverage and from charging higher premiums for living organ donors.
- Clarify that living organ donors may use FMLA time to recover from the surgeries and procedures involved in their donation.
- Direct HHS to update their materials on live organ donation to reflect these new protections and encourage more individuals to consider donating an organ.