About Us
RSN VISION
STATEMENT
RSN continues to serve the kidney community by instilling health, happiness, and
hope through education, advocacy, and awareness... one person at a time."
RSN MISSION STATEMENT
The Renal Support Network (RSN) is a nonprofit, patient-focused, patient-run
organization that provides non-medical services to those affected by chronic
kidney disease (CKD). RSN strives to help patients develop their personal coping
skills, special talents, and employability by educating and empowering them (and
their family members) to take control of the course and management of the
disease. A vital role of RSN is to provide lawmakers and policymakers with the
patients’ perspective on the needs and capabilities of people with CKD.
The Renal Support Network values people with kidney disease and helps them
become self-sufficient through education, advocacy, and hope for a better
tomorrow.
We let them know they are not alone in the struggle against kidney disease. We
will continually increase our ability to:
• Help patients find resources to manage their disease
• Produce materials and activities that make their lives more enjoyable
• Offer patients and family education on life enhancement and illness-related
issues
• Showcase the talent and untapped potential of people with CKD.
• Teach patients how to advocate for themselves with legislative partnering.
We aspire to be recognized as the premier
patient-driven organization.
PROGRAMS & SERVICES
-
Annual Renal Teen Prom
- Annual prom held in Southern California for young kidney patients, open to
teens from throughout the Unites States
-
Regional Patient Lifestyle Meetings
- Based on the theme of "Health, Happiness & Hope", meetings offer a setting
where people with kidney disease and their families can learn about issues
related to their illness in a relaxed, friendly atmosphere
-
PEPP - Patients Educating Patients &
Professionals Speaker Program - PEPP Patient
Speakers Program works with patient and professional groups to enhance
awareness about chronic kidney disease and share the patient's perspective
-
weKAN - Wellness and Education Kidney
Advocacy Network - A national group of
kidney patients who advocate on behalf of fellow patients. Live & Give, a
quarterly newsletter for patients, is a publication of weKAN
-
KidneyTalk! - Online
radio talk show hosted by Lori Hartwell and Stephen Furst, covering a wide
variety of kidney related topics
-
KidneyTimes.com - An
online library with articles written by kidney patients and home of the
annual "KidneyTimes Essay Contest"
-
HOPEline - A toll-free
call-in line offering patient-to-patient encouragement and support from
operators who have lived successfully with chronic kidney disease
-
KidneySpace.com - An
online discussion forum to air your questions, thoughts and opinions on
lifestyle issues related to diabetes and kidney disease