|
About weKAN
The Wellness & Education Kidney Advocacy Network (weKAN), is
a program of the Renal Support Network (RSN). Established in 2004, weKAN is an
interconnected group of “patient activists” from across the country whose common
goal is to ensure that people with CKD continue to receive quality care.
weKAN is unique in that it is structured to help patients help other patients
understand vital issues from the patient perspective. We address a broad range
of issues, such as renal replacement therapy options, life-enhancement issues,
the availability of community resources, pending regulatory and legislative
issues, the importance of medication and dietary adherence, and how best to
provide emotional support to patients and their family members. Importantly, the
weKAN members are part of a growing grass-roots effort of patients who are
helping to ensure that legislators and agencies clearly hear the patient’s voice
on issues that are vital to both our longevity and our quality of life.
Our efforts are helping increase awareness among legislators and medical
professionals that patients want to be involved in their own care.
|
|
|